What is the CP-AGEING project?
Cerebral Palsy (CP) is a motor disorder accompanied by sensory, communication, behavioural, cognitive and perceptual disturbances, affecting movement and posture in 2,5 per 1.000 births in EU (≈1.000.000 persons). Medical advancements have increased the life expectancy for Adults with CP (ACP), raising questions about how to best manage the effects of their ageing.
Between about 20 to 40 years old, most ACP experience some form of premature ageing (www.cerebralpalsyguide.com/community/cerebral-palsy-in-adults). They manifest a higher rate of chronic health conditions and decline in strength and functional reserve, deterioration in physical activity, increased risk of falls and musculoskeletal complications, changes in swallowing ability, dental health problems, side effects due to medications or surgeries and difficulty walking or stiff muscles (25% of ACP will lose their walking ability).
CP-AGEING project is launched for increasing the competences (attitudes, knowledge, skills) of Adults with CP and their supports on how to enhance their Well-Ageing through a tailored training program.
CP-AGEING was created to:
- Raise awareness about the relevance of preventing and dealing with the ageing effects while keeping the quality of life of adults with Cerebral Palsy.
- Create and transfer guidelines and tools on how to prevent and deal with the physical and cognitive decline and for keeping and/or strengthening autonomy and social inclusion, including the selection and exploitation of assistive technologies.
- Promote the implementation of the innovative strategies in institutions but also at home, promoting self-care and autonomy.
- Focus on the ageing of supports and its impact in the support itself, grieving process or legal and economic issues among others.
- Strengthen the cooperation between institutions, adults with Cerebral Palsy and supports.
- A syllabus for improving the well-ageing of adults with Cerebral Palsy will be co-designed, with the direct participation of end users (adults with cerebral palsy and supports) aiming at involve them from the beginning in the development of the Training Program and take their considerations into account.
- Training package for preventing and dealing with the physical ageing of adults with Cerebral Palsy.
- Training package for preventing and dealing with the cognitive decline of adults with Cerebral Palsy.
- Training package for keeping the autonomy and social inclusion of adults with Cerebral Palsy along their ageing process.
- An accessible e-Training Platform will be build including training materials, training activities, serious games, tools for enhancing the e-learning experience, etc.
- Validation pilot actions will be implemented in Spain, Portugal, Slovenia and Greece with adults with Cerebral Palsy where all the Training Packages and the accessible e-Training Platform will be put into practice and tested.
- 4 national multiplier events will be organized, where all the project results will be introduced to the main national stakeholders.
CP-AGEING will create a Training Program ...
- With direct participation of Adults with Cerebral Palsy as trainees, adapting the training methodology and outputs to their learning needs.
- Focusing on the issues with more impact for improving the well-ageing of Adults with Cerebral Palsy (ACPs), encompassing physical and cognitive decline, keeping and/or strengthening autonomy and social inclusion
- Including references to useful Assistive Technologies which can support the well-ageing of ACPs.
- Promoting the implementation of the innovative strategies in institutions but also at home, promoting self-care and autonomy.
- Based in practical and experiential approaches where trainees can directly apply the knowledge get from the project into their own context depending on the needs and willing of each ACPs.
- Integrating the Supports of ACPs (relatives and professionals) in the Training Activities.
- Considering the specific culture and lifestyle habits of the different European countries participating in the project.